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Brynn McLennan raised money to be treated in California for her debilitating muscular dystrophy; Tina Kapel sought help to combat Parkinson's; Riley Cokes to curb the paralyzing effects of a car accident.They are among a seemingly growing number of Canadians heading to the United States for what was once the purview of developing world entrepreneurs: unproven and unregulated stem cell therapies.MIKE CARROCCETTO, THE OTTAWA CITIZEN / POSTMEDIA NEWSBrynn McLennan in 2010.A smattering of Canadians including the Alzheimer's stricken lead singer of Spirit of the West have for several years ventured to places like China and Mexico for stem cell treatment of dubious value and safety."There is a widespread misconception that if there is a clinic in the United States making these claims about stem cell therapy, then that must somehow be legitimate or credible," said Leigh Turner, a Canadian professor at the University of Minnesota's Center for Bioethics.But American regulators "all too often are missing in action and standing on the sidelines," he said, instead of ensuring the facilities are safe and effective.Experts attribute the sector growth to a combination of buzz around the technology, lax regulation and demand from desperate patients.Legitimate scientists do believe that stem cells non specific cells that can transform into various different types actually have great potential in what's called "regenerative medicine" growing new tissue to replace damaged or diseased parts of the body.With scientific effort and government funding flooding into the field, there have been some breakthroughs, including a small Ottawa trial that recently suggested a high risk stem cell therapy can stymie multiple sclerosis. But most applications of the technology are at an early stage."There is such a profound gap between the claims they are making and the current reality of stem cell research," Turner said. "It's really premature to hit the marketplace."Yet some patients, like Ottawa's McLennan, swear by the treatments they have received, in her case at California's Stemgenex.

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Added Jan 23 '18

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